Resources

For Families: 

  • Art with Heart, books and programs that specialize in mental health therapies designed to lessen the damaging effects of stress on a child's mental, emotional and physical health. 
  • Association of Cancer Online Resources, ACOR is a unique collection of online cancer communities designed to provide timely and accurate information in a supportive environment. A free lifeline for all affected by cancer and related disorders.
  • BraveKids, provides a support community and resources for children and youth aged 6-17 with disabilities and chronic/life-threatening illnesses and their families and caregivers. 
  • CancerCare, provides telephone, online and face-to-face counseling, support groups, education, publications and financial and co-payment assistance. Professional oncology social workers offer personalized care and all services are free of charge. 
  • Children's Oncology Group, Survivorship Guidelines, guidelines to follow for screening and management of late effects that may potentially arise as a result of having had cancer and/or treatment. The COG recommends discussing this information with your doctors, as medical and scientific language is used heavily in the guidelines. 
  • Family Voices, a national network of state based programs that provide families who have children with health care needs with tools to make informed decisions, advocate for improved public and private policies and build partnerships among professionals and families in need. A trusted resource on healthcare.
  • HeathFinder.gov, promotes better heath through education and awareness. 
  • Heartfelt Hugs, a support group for siblings of children with cancer or other life threatening illnesses. Shining Star Addison's older sister Madelene founded this amazing non-profit to remind siblings of critically ill children that they are special.
  • Kids Mobility Network, a non-profit organization providing children with disabilities with durable medical equipment, such as wheelchairs, walkers and other medical equipment.
  • National Respite Locator Service, provides planned or emergency care for a child or adult with special needs in order to provide temporary relief to family caregivers who are caring for that child.
  • SuperSibs, a national nonprofit organization ensuring that siblings of children with cancer are honored, supported and recognized so that they may face the future with strength, courage and hope. 
  • The National Children's Cancer Society, NCCS serves as a financial, emotional, and educational resource for families that struggle to make ends meet when their child is diagnosed with cancer. 

For Kids:

  • KidsHealth Cancer Center, a kid-friendly site that helps kids learn about all facets of cancer, including the different types, information on treatments, dealing with emotional stress of cancer, bullying and school as well as first hand stories from other kids and teens who have had cancer. 
  • NIAMS Kids Page, The National Institute of Arthritis and Musculoskeletal and Skin Diseases created a resource page just for kids, to help affected children develop good habits.
  • Epilepsy, information for young adults and teenagers about living with epilepsy.
  • Children's Liver Disease Foundation, a website for teens that has information about the liver, childhood liver diseases and living with the illness. Features stories from teens across the country who have CLD, and offers networking and chat opportunities on the message board. 
  • Immune Deficiency Foundation, page that provides links, resources and games to help children with primary immunodeficiencies and their families. 

For Teens: 

  • Riding the Cancer Roller Coaster: A Survival Guide for Teens, a young cancer survivor from Maryland discusses the unique challenges of battling cancer in your teen years. 
  • Group Loop, a secure online community designed to address the needs of teens with cancer aged 13-19. Teens can meet and connect with each other to build social and emotional support networks, and to regain a sense of control over their lives. 
  • Teens Living with Cancer, TLC offers a fact page, information on dealing with what you have been faced with, staying healthy, and a way to connect with other teens dealing with similar issues.
  • Teenage Cancer Trust, an educational and networking site specifically for teenagers.
  • Beyond the Cure, a cancer survivorship website that offers information on the late effects of childhood cancer diagnosis and treatment. They offer scholarship information, web conferences and continuing education information for future nurses.  
  • Teen Cancer America, Roger Daltrey and Pete Townshend of The Who created this non-profit dedicated to improving the lives of teenagers and young adults with cancer. This organization partners with hospitals to create youth-oriented centers for those receiving treatment. These units provide peer support networks and interaction at in-patient and out-patient treatment centers. 
  • 2bMe, a site for teens with cancer. Get the scoop on the non-medical stuff you've been wondering about- from hair to skin to friends and fitness!
  • 3LittleBirds4Life, a wish-granting organization for young adults battling cancer.